*I began this post a week or so ago using my browser on my phone as my landline internet had been disconnected in preparation for our return to Kentucky. Since my phone is a piece of crap, I only got so far before experiencing technical difficulties that I was unable to resolve. Now, that we are back in Kentucky and I have finally unpacked my laptop, I’m going to finish the post. I am leaving the part that I typed before I was forced to give up. I apologize for the long delay in updates!
I type this post from my phone as I have already disconnected the internet in our apartment and I have been very vocal with my hatred of my phone and its infuriating touchscreen so please allow me to apologize in advance for any typos and probably the short length of this post. Compound that with the fact I have a sleeping 4-week old baby in my arms, so I’ll try to be concise.
Here I sit in the customer lounge of the local Dodge dealership as I wait for the service department to change the oil and other regular maintenance in preparation for our 1000-mile trip back to Kentucky. We’ve reserved our uHaul and we have a few boxes packed up. All of these actions bring on feelings of excitement and nostalgia as the hours count down to our final departure from our second home. Now, I spend a few extra moments admiring all of our surroundings and soon to be distant memories. Of course, there is no place like home, but West Palm Beach is like our second home and we’ve grown quite comfortable here, navigating the city like a local, and even building a small network of friends. We actually like this place, with its nearby beaches, abundant shopping opportunities, nice weather, and beautiful scenery. It’s a nice change from the small town life in Union County.
In our last days in West Palm Beach, we took extra time to savor our “second” home, though lately it’s felt like our permanent home. I took a few strolls around Okeheelee Park. We looked at everything as if it was our last time seeing it.
We reserved our uHaul and began the arduous process of packing and loading. It was strangely nostalgic for me as I recalled coming down here in a similar uHaul beginning our journey and now here we are, all done and closing the book. Once we got everything loaded up, I took a long look at the empty apartment and I could see memories of Nathan and I tending to Drew and his needs, the sponge baths, the bedtime stories, the showers, the video games, the feeding the ducks in the pond. The memories played before me in this empty space that was once bustling with activity, drama, excitement, accomplishments. If only the next residents that moved into this place could know what occurred here. I almost think of it as a shrine, a memorial. Driving out of the property gate for the last time and watching it grow smaller and smaller out of the rearview mirror was bittersweet. Our time in West Palm Beach has been monumental. Two of the most epic events happened to us here. Drew came down here confined to a wheelchair or hopping on his butt. He has changed so much in the last 14 months that it’s hard to tell he’s even the same kid. He’s actually standing on two straight legs. It’s just mind-boggling to think of Drew before these events. Then, of course, we had the unexpected and beautiful surprise of a new baby, Holden. We drove down to West Palm Beach in our uHaul in April 2012,
a family of three including a disabled boy. Now, Drew is up on his feet and we have an entire new person. It’s surreal. Shortly before our departure, we were reinterviewed by a local news channel to update our first story about Drew and I was asked what it was like going back home after all of this time and I said that it was as if we had been reborn. The transition our family has experienced is beyond belief or description.
All in all, it’s good to be home. Our trip was surprisingly easy, despite having a delay due to Holden being admitted to the hospital over a fever putting of our departure for two days. The boys were well-behaved and posed little problem. We made it home, though our sanity has been compromised by all of the boxes and furniture that need to be unpacked, organized, and cleaned. We were stressed having to pack and load everything in preparation for our trip but none of that compares to the overwhelming stress brought on by having to reorganize almost 2000 square feet of house to accommodate all of this stuff. Sometimes, I think it would be easier if the house would suddenly and “tragically” fall into a sink hole. I don’t think Nathan or I would be too distraught! We’ve already had to secure a storage unit and are planning to host a yard sale this coming weekend to make room for everything.
Drew is doing really well. His left leg, though considerably bigger than his right, is slowly getting stronger. It’s still extremely sensitive to touch since he had a cast on for so long. But, it’s no longer painful to place his brace. We do have to keep it unlocked
for the first 10-15 minutes after putting it on just to slowly acclimate his leg to a straight position, but he took to this left brace quicker than he did his right. He’s already showing off to anybody willing to look that he’s able to lift his legs by himself and stand up. He’s so excited to be fixator and cast free. His legs have suffered a lot of scarring though, something that I think we be in his favor when it comes to the playground “battle wound” competition between school boys.
Now that Drew is fixator and cast free, I’ve noticed a few things that I never thought was that special before, like wearing shorts straight out of the store with no adaptation. Drew can fit inside a swimming pool kid floatie ring. We aren’t beaten up by the solid fixator rings when carrying Drew. We can hold him close. All of these things are so simple to everybody else, but for the last year we haven’t been able to do so many things because of Drew’s fixator. We no longer worry about infection from public places infiltrating Drew’s pin sites. Drew can sit at a booth in a restaurant with no adaptations. The new freedom that we all have is a relief!
Moving forward, we are to see Dr. Paley in October for a follow-up and then other frequent follow-ups every 3, 6, and 12 months. Drew does have one more very minor leg surgery to remove a metal rod from his left femur which will be in about 6 months. We’ll visit West Palm Beach for a few days for each consult, but nothing like our 5 and 7 month stays in our past. Drew is also scheduled for open heart surgery in Nashville on July 25th. So, I’ll be sure to keep everybody updated!