Life After Surgery

Well, it’s been a nice change of routine to have Daddy home this last week.  It wasn’t so overwhelming finally having him by my side again.  The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting.   I finally have…

Eight Weeks Post-Op

Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…

CCK, How Do You Feel!?!

Well, it took 10 weeks, but we finally received Drew’s braces.  And, this time it was quite the drama. After numerous calls to the doctor’s office to rush paperwork and update requests to the orthotist, we finally had an appointment to fit Drew’s new braces.  And, just in time too because mid-week on Spring Break,…

It has been pretty hectic in our household this past month.  I’m struggling with how to smoothly transition between one subject to another and, well, basically figuring out where to start…. So, it’s been over a month since Drew’s hand surgery.  He had his cast on for a total of five weeks and it was…

Warning: Major Vent Session Ahead

I’m sitting here fuming and angrily pacing my house.  I figure I’ll go take a shower to calm down, but I’m so frustrated that I can’t do that.  I want to make a phone call and be extremely rude and intimidating so I figure I better get my aggression out before I’m unable to resist…

Florida-Bound!

So, I last left off waiting for Drew’s braces which we FINALLY did receive.  Turns out they had ordered new bars, but the ones that came in weren’t the correct ones so they had to re-order new bars which extended the wait.  We finally got them and Drew remembered how to walk luckily! This time…

More About the Braces

So, we’re still waiting for Drew’s braces.  We should get them back any moment now.  Everytime a FedEx truck is within sight, I clasp my hands together in hope and excitement and then my grin melts in defeat as it just continues down the road. It’s been about a month now without braces.  Aside from…

Drew Walking….or Not So Much

Well, would you believe that since my last post detailing a catastrophic break to Drew’s braces rendering them not usable and them getting fixed that Drew has broken yet another bar?!? This will make at least the third break.  And this bar only lasted three weeks max before breaking again! Each break has occurred in…

Stressed!

Aye-Aye-Aye…school may have ended for the summer, but it’s been no break for us.  Just in the last two weeks we have made two trips to Louisville and two trips to Nashville, including for surgery.  And, if that wasn’t enough, now we must plan for a new leg surgery in Florida in the very near…

Drew’s Biggest Year Ever

We’ve been fortunate enough to have a Medicaid card for Drew’s disabilities to help offset the cost of Drew’s significant medical expenses.  Though this service doesn’t cost us dollars and cents, it does cost a lot of effort and labor.  I have been tasked with documenting every interaction with a medical professional between July 2011…

Problems at Night

Days with Drew are great and fun, general 6-year-old annoyances and tempers aside.  But, nights?  Drew has spent the last several nights thrashing in restless sleep, screaming in incoherent and inconsolable outbursts.  Because of his history, we are always inclined to believe he’s in pain.  But sometimes during the outbursts causing him to hyperventilate and sometimes…