Another trip to Cincinnati over and done. Getting back into my truck for a lengthy drive wasn’t exactly what I had hoped so shortly after returning from Florida, but I managed to bear with it. Even as I drove the whole trip with wet, cold shoes since we spent a couple of hours playing in…
Category: Drew Walking Tall
It Gets Real
I’ve known about these impending leg surgeries in Florida since July. Dr. Paley described them to us during our last visit. It’s no surprise. But, what was surprising to me was how hard it hit after Drew’s recent follow-up with Dr. Paley on Monday. Drew and Daddy flew to Florida the seventh time, thanks to…
Florida-Bound!
So, I last left off waiting for Drew’s braces which we FINALLY did receive. Turns out they had ordered new bars, but the ones that came in weren’t the correct ones so they had to re-order new bars which extended the wait. We finally got them and Drew remembered how to walk luckily! This time…
More About the Braces
So, we’re still waiting for Drew’s braces. We should get them back any moment now. Everytime a FedEx truck is within sight, I clasp my hands together in hope and excitement and then my grin melts in defeat as it just continues down the road. It’s been about a month now without braces. Aside from…
Drew Walking….or Not So Much
Well, would you believe that since my last post detailing a catastrophic break to Drew’s braces rendering them not usable and them getting fixed that Drew has broken yet another bar?!? This will make at least the third break. And this bar only lasted three weeks max before breaking again! Each break has occurred in…
Back to “Normal”
It’s been good being back in Kentucky even though the proximity of the ocean in our old West Palm Beach home kept the air less humid. But, I missed seeing the country. I never realized how truly awesome it is to look out upon the land in front of me to see miles of rolling…
Aaaaaand We’re Back
I feel so terrible for neglecting my blog! I apologize for my lengthy hiatus from updating how things are going. Things have been hectic, even for us. Plus, I forgot – amongst other things – to pack my laptop charger so my mother-in-law had to ship us a few items and I’ve been anxiously tapping…
Drew Continues to Impress
Drew has continued to excel, breaking new records. He started by amazing us by walking almost 200 feet in his gait trainer in a bid to walk to his Yaya’s office at the hospital. Then, he more than doubled that yesterday, even at times “running” as he loves to race! And, for the first time…
Drew is Walking (and Hopefully You Will Be Too!)
It’s been too long since I’ve posted about Drew, but there have been many things to write about. Between planning the 5K, doctor appointments, and, frankly, just being so exhausted in this stage of pregnancy, I’ve become quite distracted. Drew is doing phenomenal in therapy. I have to admit, I was skeptical about doing therapy…
A Trip to Nashville
Well, it’s been nearly a month since we’ve returned to Kentucky, but it feels like it’s much longer. I guess because are on the edge of being done with fixators and anxious to have it removed. It’s kind of like the last 100 miles of a road trip: those last 100 miles are grueling! Not to…
Drew Walking Tall Music Festivities
The weeks are counting down to our return to Florida. And, luckily, we just missed Hurricane Isaac. It was strange following the story of the hurricane so closely. Of course, I’m an avid follow of US and world events, but hurricanes have had no direct impact on me or my family before. So, watching the…
Update on Drew
Well, the good news is that Drew’s recent changes in his heart doesn’t require immediate intervention. They are going to continue to follow him clinically, but we have been downgraded to twice yearly appointments. We had been seeing the cardiologist once a year so this is a small step backward. But another heart surgery is…
drewunarmed 