Well, it took 10 weeks, but we finally received Drew’s braces. And, this time it was quite the drama. After numerous calls to the doctor’s office to rush paperwork and update requests to the orthotist, we finally had an appointment to fit Drew’s new braces. And, just in time too because mid-week on Spring Break,…
Category: Memories
Drew’s Birth Story
Today, February 6th, is Drew’s 8th birthday! Eight! Happy Birthday, Drew! So, in honor of his birthday, I wanted to share his birth story. We had a planned C-section in Nashville, Tennessee at Vanderbilt. We knew of his syndrome as early as just a few months into the pregnancy and the disorders that came along…
Well, it happened. Drew spoke of his limb difference. I was rolling his sleeves up on a new shirt and Drew casually said, “I wish I was like other kids.” “How so?” I responded, always carefully avoiding implanting the idea of his differences. I was hoping that he was speaking of his legs, for which…
Finally Good News!
So many exciting things have happened since my last gloomy post. First, we’ve made numerous trips back and forth between home and Evansville, IN (an hour drive) to adjust Drew’s braces. We’ve had a few goals in mind to alleviate some issues including the lack of extension his legs have. He’s not quite able to…
Drew’s Biggest Year Ever
We’ve been fortunate enough to have a Medicaid card for Drew’s disabilities to help offset the cost of Drew’s significant medical expenses. Though this service doesn’t cost us dollars and cents, it does cost a lot of effort and labor. I have been tasked with documenting every interaction with a medical professional between July 2011…
Problems at Night
Days with Drew are great and fun, general 6-year-old annoyances and tempers aside. But, nights? Drew has spent the last several nights thrashing in restless sleep, screaming in incoherent and inconsolable outbursts. Because of his history, we are always inclined to believe he’s in pain. But sometimes during the outbursts causing him to hyperventilate and sometimes…
Drew is a Miracle!
I didn’t intend on blogging anything tonight, but as I finished putting together my dinner in the kitchen and being joined by Drew in the kitchen, who having missed me took it upon himself to get off of the chair and walk to be with me, I have once again become inspired and amazed of…
Six Wonderful Years
February 5th 2008 It is my last day of work before the start of my maternity leave. I intend to work the full day and even enjoy my boss and colleagues throwing me a surprise baby shower at work, but due to severe weather in the area, I had to leave early in attempt to…
A Positive Look Ahead
A lot of exciting things going on this week. Physical therapy is going well. In fact, we got to scale down therapy from five days a week to three days a week (plus one day of therapy provided by the school). It’s a moment of “aaaaaaah!” when I get Drew off of the bus and…
Drew at his Greatest
Even though it has been over a month since I’ve updated this blog, I have continuously thought about it and tried to archive thoughts and experiences to discuss whenever I got around to it again. It almost seems kind of humorous that our lives have become so mundane that I have trouble finding things to…
Drew’s First Real Fall
It was bound to happen. I have just been anxiously waiting for the moment to come. I knew it was inevitable as much as we did to try to prevent it, but it finally happened. Drew fell. Don’t worry, he wasn’t injured and he managed to take measures to minimize any injury. Maybe it was…
The Moment We’ve All Been Waiting For
I know it has been a long time since I have written. My schedule is pretty rigid – maintaining a household, breast-feeding a baby, and all of the work that goes into raising Drew, but something so special has happened that I have taken time out of my regularly scheduled cleaning routine while Drew is at…
drewunarmed 