OK, I’m not even going to start this post with some flim-flam excuse about why it’s been so long since I’ve updated – since August 2019. I’ve thought about this blog about once a week since December and tried to motiviate myself to document our goings-on as I once did so faithfully, but the motivation…
Category: TAR Syndrome
Hurtful Words
As you can expect, Drew is quite the curiosity when meeting new kids. It’s not unusual for him to be subject to looks and questions, which is totally understandable. Young kids are naturally curious and polite questions about his arms haven’t been an issue. Drew would casually respond, “I was born this way.” But, other…
Growing Upwards and Onwards!
Summer break is over and what a summer it was. Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum. We visited Florida for a follow-up with Dr. Paley. We were lucky to be 30 minutes or…
Summer Vacation is Here
I know it’s been an unusually long time since my last post. It’s definitely much harder when school is out finding lengthy periods of time in which I can escape to my laptop in another room, thanks to a nosy 4-year old who is obsessed with tapping the keys of said laptop whenever he’s…
“Why Are His Arms Like That?” The Pivotal Question
PSA: The following is simply my opinion and I do not suggest that those who think and act differently are wrong or should be condemned. I’m merely sharing my perspective and describing how I came to respond to a specific situation. I still offer the utmost respect to those who, using their own experiences to…
More About the Braces
So, we’re still waiting for Drew’s braces. We should get them back any moment now. Everytime a FedEx truck is within sight, I clasp my hands together in hope and excitement and then my grin melts in defeat as it just continues down the road. It’s been about a month now without braces. Aside from…
Joining a Soccer League
I could immediately tell that Drew was excited about something special. As Drew exited the bus after school, he very excitedly told me to look in his binder which I promptly did. There was a flyer from the local YMCA about a youth soccer league for the elementary school kids. Drew looked at me with…
Florida and Cincinnati
Well, it has taken me this long to follow-up here about the remainder of our Florida trip plus some new developments in Drew’s medical future. Now that school is back in session, I finally have some freedom to sit down and piddle away on the internet. The remainder of our trip in Florida went well. …
Bragging Rights
Whew….I’ve had a hard week, and what better time to have a hard week than when Nathan is home to pick up my slack as I try to regain my composure after a stressful week thus the lack of activity on this blog. Apologies aside, I have many updates. Foremost on my mind is a…
They See Me Rollin’
Drew and I went to the zoo this weekend with a friend and together we slowly admired all the animals present. At least I think there were animals there. I was so busy nervously watching Drew roll around on his monster truck amongst the foot traffic, steep slopes and sharp turns or heavily panting from…
Independent Drew
As a doting mother, I’m torn between the pride of watching my little boy grow up and accomplish “big boy” deeds and the sentimentality of my little boy’s innocence and dependence on me and his daddy. Such as this morning as we approached the school. He insisted on walking on his own across the parking…
Whatever he knee-ds to do
Drew started something new yesterday: walking on his knees. Those of you who have been in real company of Drew, no doubt has seen his “booty scoot” but yesterday he started walking on his knees. I don’t know what made him start doing it. My guess is it’s his way of being defiant towards Mimi,…
drewunarmed 