Whew, it’s been a long time since I’ve blogged!!! Now that things have slowed down in the specialist/surgery department, our lives have almost been routine and mundane. But, Drew’s braces have kept things a little interesting. I’m telling you, HKAFO’s are no joke. Drew’s HKAFO’s are a life-saver and provide so much wanted independence for…
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The Moment We’ve All Been Waiting For
Originally posted on drewunarmed:
I know it has been a long time since I have written. My schedule is pretty rigid – maintaining a household, breast-feeding a baby, and all of the work that goes into raising Drew, but something so special has happened that I have taken time out of my regularly scheduled cleaning routine…
Drew’s Birth Story
Originally posted on drewunarmed:
Today, February 6th, is Drew’s 8th birthday! Eight! Happy Birthday, Drew! So, in honor of his birthday, I wanted to share his birth story. We had a planned C-section in Nashville, Tennessee at Vanderbilt. We knew of his syndrome as early as just a few months into the pregnancy and the…
Just a Little Venting
You know, I’ve been through a lot in my life: the death of my first-born son, multiple pregnancy losses, learning to cope with challenges and limitations of a chromosomal defect that caused the aforementioned issues and some other experiences in my past that I never talk about. Everybody has their battles and their own coping…
UPDATE to Brace Yourself
I am compelled to quickly return to my blog to provide a much unbelievable and humorous turn of events. But, before I blindly update, please allow me to quickly review the process I’ve been through to ensure this update makes its full impact. Please do read the previous post in its entirety as I believe…
Brace Yourself
Well, Drew started soccer and though it was nerve-wracking at first, it wasn’t all that bad. They performed some drills and Drew enjoyed kicking the ball around and even practiced playing goalie. He wasn’t able to run the warm-up lap which made me worry at first that this would be the moment his shoulders would…
The Struggle With Braces
Well, the braces with the new knee joints were all great while they were shiny and new, but we quickly realized that our struggles have yet to be completely relieved. It started with a mysterious rare pop that came from his knee joints sparking anxiety in us all fearing that the joint would collapse causing…
Never Ending Story
My personal laptop continues to infuriate me with its stubbornness and hateful refusal to work properly so here I am at the public library trying to formulate all of my cumulative thoughts that I’ve been stewing into an organized and creative post. So, I might ramble on relentlessly as all of my tightly contained thoughts burst through a…
Back at Square One
Well, Drew’s cast has since been removed and here’s hoping that Drew will no longer require a cast. I’m sure the technician suffered some percentage of hearing loss amidst the shrill saw and the even shriller screaming from the panicked Drew. Drew has a new scar to his collection. The incision from his July surgery…
Drew the Overcomer
This post comes on the heels of Drew’s newest accomplishment of swimming across one of those circular above-ground pools while coming up for air between strokes. I wish I could post the video directly here, but there is an extra annual charge for that so you’ll have to visit YouTube here to see it. It’s…
Going to Need Therapy After all of Drew’s Physical Therapy
Last post, I preached about remaining positive despite your plights, and my righteous opinion seems to have come back to test us. While Drew has made great strides towards recovering from surgery and accomplishing new awesome thing in the walking arena, his behavior has been very challenging. We aren’t sure what’s causing the outbursts of…
A New and Improved Heart
It was a long week and I’m happy that it’s over with. Drew’s heart was repaired and came through the surgery and recovery strong. Of all of Drew’s previous surgeries, including his first open heart surgery, this one was the toughest on Drew as we’ll as on me to watch Drew experience. Watching Drew being…
drewunarmed 