We are still shell-shocked upon learning that we’ve only been worsening Drew’s rotation for the last three weeks, bringing even more upon him than imaginable. I shudder to think of each day, following the adjustments, Drew would weep and moan, “It’s too tight! Loosen it up!”  To think that we were basically using a vice…

Drew’s left leg surgery started off very well.  He was alert immediately after the surgery, he was in better spirits and seemed to handle the stress of it all much better than the first.  Then, the adjustments started.  Almost immediately, we could tell that they were much harder on Drew than the adjustments were on…

It’s dangerous to write a post when you are at one of your lowest moments, but I just feel like I’m losing it.  How much more can a single person take?  I hear people offer words of comfort about how God only gives a person as much as one can handle, but lately, I’ve been…

The daily adjustments have been really hard on Drew this time around.  So much so, that we have to do them early in the day so he won’t be up throughout the night moaning and disturbing mine and Nathan’s sleep.  They seem to be much more painful this time. His therapist has noted that he’s…

Drew has had his new fixator now for one week today and I have to say again that this experience has been much smoother than last.  Drew is still in pain and taking regular pain medication, but in general this isn’t as hard as I feared it would be.  Drew’s leg is a lot better…

Well, surgery on Drew’s left leg is complete and was a success.  And, I’m excited to report that Drew’s pain level is very well managed and not nearly as intense as it was during the right leg surgery and Drew has been in relatively high spirits.  Upon seeing Drew immediately after surgery, it was already…

I write this with tears falling down my cheeks as they have been for the last 20 minutes laying in bed trying to relax and go to sleep.  But, I can’t relax.  Drew’s big surgery is, by the time I finish this post, tomorrow and I am more anxious about this surgery than I have…

I had been counting down the days until Friday, October 12 and finally this eventful day arrived.  I had been doing what I can to get Drew excited about the removal of the cast telling him we were going to go to the movie theater tonight and watch a movie.  The poor thing hasn’t been out…

Five months later, Drew’s right fixator has been removed.   It wasn’t exactly the surgery that we thought it was going to be, but turns out that I’m very glad that he doesn’t also have a new fixator.  The placement of a fixator is a lot more painful recovery and a longer stay in the…

We have been dreading and anticipating Drew’s pre-op appointment this entire week.  Maybe it was counting down the days to major surgery, but it seemed these days have been creeping at a snail’s pace while we savored last experiences we knew we wouldn’t be able to enjoy for a long while after Drew’s surgery.  So,…

Tuesday found us packing and making our final goodbyes to local friends and family as we head out for our long haul to Florida.  We started the morning off by visiting the Morganfield Elementary School so Drew could visit new and old friends. Meanwhile, I got the oil changed on my truck. We finished packing, hosted…

I think that we have adapted our lives pretty well to Drew’s TAR Syndrome.  Oftentimes, I feel like our lives aren’t much different from the next American family.  Obviously these times existed prior to Drew’s leg surgery, but overall I still mostly feel that we are a normal family.  However, last night, TAR Syndrome really…