Believe Therapy – Day 1

We’ve been anticipating this specialized therapy for a few months, but it still seemed to sneak up on us out of the blue.  And, not to be out done, “life” was bound and determined to make this trip as stressful as possible starting with a miserable head cold making its way through the family one…

Countdown to Special Therapy

T minus two weeks.  Drew’s specialized therapy begins on Monday, January 16th and the real work begins. Even though I have been a strong advocate for this therapy for Drew, I did ask myself if we were going to excessive lengths for Drew’s needs.  But, the battle for traditional physical therapy has secured my confidence that…

Another Successful Trip to Florida!

Last week, Drew and I flew to Southern Florida for Drew’s first follow-up with Dr. Paley since this summer’s corrective surgeries.  Only a small part of me felt a little stressed having to complete yet another cross-country trip to Florida because bitter cold weather blew through Kentucky making our upcoming trip  a treat.  But, our delight was…

Going Through the Motions

I know it’s been  a long time since I’ve shared.  I’ve just been going through the motions of raising a mobility-challenged child so it feels slighty routine and unremarkable, yet there are highlights of excitement. Physical therapy has been normal.  I am disheartened to acknowledge that Drew has lost a lot of range of motion…

Thumb and Therapy

Another trip to Cincinnati over and done.  Getting back into my truck for a lengthy drive wasn’t exactly what I had hoped so shortly after returning from Florida, but I managed to bear with it.  Even as I drove the whole trip with wet, cold shoes since we spent a couple of hours playing in…

And We’re Outta Here!

We just finished up our four-month stint in Florida.  We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation.  Of…

Gaining Momentum

Drew just finished up his sixth week of physical therapy.  Drew has come a long way since the beginning of this summer: his legs went from perpetually bent to completely straight and he’s gone from complete weakness from unused muscles and abilities to just beginning to stand on his own and even attempt steps by…

Therapy Continues

Drew just completed his fourth week of physical therapy.  It’s gone pretty good, though his progress has been slower than I like.  His range of motion is making incremental improvements.  He’s standing for very short periods of time and walking using a Lite Gait apparatus to help support his weight.  Drew has maintained cooperation and…

Just a Little Venting

You know, I’ve been through a lot in my life: the death of my first-born son, multiple pregnancy losses, learning to cope with challenges and limitations of a chromosomal defect that caused the aforementioned issues and some other experiences in my past that I never talk about.  Everybody has their battles and their own coping…

Life After Surgery

Well, it’s been a nice change of routine to have Daddy home this last week.  It wasn’t so overwhelming finally having him by my side again.  The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting.   I finally have…

Eight Weeks Post-Op

Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…

In Our Stride

I’m relieved to report that we have hit our stride in this surgery process.  Pain is no longer as intense.  Drew only requires pain medicine twice a day.  I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…