Well, would you believe it: Things have been pretty much stable and uneventful for the last three months. It’s not that I have forgotten my blog, it’s just that for once, our lives have been pretty normal! Last update centered on Drew’s 11th leg surgery to remove some hardware in each leg. Since, he’s back…
Tag: braces
Surgery #11
Sometimes, I just don’t have a beautifully thought out riveting opener to my posts to pull you in. And, this one won’t be an exception. I’m just going to jump right on in like you would a pool after a few cool evenings. After much hassle and many miles, we finally got Drew’s hip piece…
Growing Upwards and Onwards!
Summer break is over and what a summer it was. Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum. We visited Florida for a follow-up with Dr. Paley. We were lucky to be 30 minutes or…
Summer is Coming to an End
I usually reserve posts for when I’m feeling inspirational or have a strong, thought-out opinion about a matter, but this time I’m just going to document some events that have occurred over the summer. Typically, I dislike the “reciting a series of events” style of writing, but my hope is one day that Drew will…
Summer Vacation is Here
I know it’s been an unusually long time since my last post. It’s definitely much harder when school is out finding lengthy periods of time in which I can escape to my laptop in another room, thanks to a nosy 4-year old who is obsessed with tapping the keys of said laptop whenever he’s…
Another Successful Trip to Florida!
Last week, Drew and I flew to Southern Florida for Drew’s first follow-up with Dr. Paley since this summer’s corrective surgeries. Only a small part of me felt a little stressed having to complete yet another cross-country trip to Florida because bitter cold weather blew through Kentucky making our upcoming trip a treat. But, our delight was…
Going Through the Motions
I know it’s been a long time since I’ve shared. I’ve just been going through the motions of raising a mobility-challenged child so it feels slighty routine and unremarkable, yet there are highlights of excitement. Physical therapy has been normal. I am disheartened to acknowledge that Drew has lost a lot of range of motion…
And We’re Outta Here!
We just finished up our four-month stint in Florida. We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation. Of…
Therapy Continues
Drew just completed his fourth week of physical therapy. It’s gone pretty good, though his progress has been slower than I like. His range of motion is making incremental improvements. He’s standing for very short periods of time and walking using a Lite Gait apparatus to help support his weight. Drew has maintained cooperation and…
Just a Little Venting
You know, I’ve been through a lot in my life: the death of my first-born son, multiple pregnancy losses, learning to cope with challenges and limitations of a chromosomal defect that caused the aforementioned issues and some other experiences in my past that I never talk about. Everybody has their battles and their own coping…
Life After Surgery
Well, it’s been a nice change of routine to have Daddy home this last week. It wasn’t so overwhelming finally having him by my side again. The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting. I finally have…
Eight Weeks Post-Op
Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…
drewunarmed 