Gearing Up for Surgery

I can’t believe how long it’s been since I’ve written about Drew. I just checked my last post and I’ve been quiet since June 2018. It’s not that I’ve been so preoccupied with endless challenges of special needs parenting, but it’s not been uneventful either. I’ll call it a mix between lack of motivation and…

Surgery #11

Sometimes, I just don’t have a beautifully thought out riveting opener to my posts to pull you in. And, this one won’t be an exception. I’m just going to jump right on in like you would a pool after a few cool evenings. After much hassle and many miles, we finally got Drew’s hip piece…

Summer is Coming to an End

I usually reserve posts for when I’m feeling inspirational or have a strong, thought-out opinion about a matter, but this time I’m just going to document some events that have occurred over the summer.  Typically, I dislike the “reciting a series of events” style of writing, but my hope is one day that Drew will…

Summer Vacation is Here

  I know it’s been an unusually long time since my last post.  It’s definitely much harder when school is out finding lengthy periods of time in which I can escape to my laptop in another room, thanks to a nosy 4-year old who is obsessed with tapping the keys of said laptop whenever he’s…

Another Successful Trip to Florida!

Last week, Drew and I flew to Southern Florida for Drew’s first follow-up with Dr. Paley since this summer’s corrective surgeries.  Only a small part of me felt a little stressed having to complete yet another cross-country trip to Florida because bitter cold weather blew through Kentucky making our upcoming trip  a treat.  But, our delight was…

Going Through the Motions

I know it’s been  a long time since I’ve shared.  I’ve just been going through the motions of raising a mobility-challenged child so it feels slighty routine and unremarkable, yet there are highlights of excitement. Physical therapy has been normal.  I am disheartened to acknowledge that Drew has lost a lot of range of motion…

And We’re Outta Here!

We just finished up our four-month stint in Florida.  We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation.  Of…

Gaining Momentum

Drew just finished up his sixth week of physical therapy.  Drew has come a long way since the beginning of this summer: his legs went from perpetually bent to completely straight and he’s gone from complete weakness from unused muscles and abilities to just beginning to stand on his own and even attempt steps by…

Life After Surgery

Well, it’s been a nice change of routine to have Daddy home this last week.  It wasn’t so overwhelming finally having him by my side again.  The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting.   I finally have…

Eight Weeks Post-Op

Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…

In Our Stride

I’m relieved to report that we have hit our stride in this surgery process.  Pain is no longer as intense.  Drew only requires pain medicine twice a day.  I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…

The Pain

Drew ended up spending three nights in the hospital instead of two as he did for his right.  His pain level was quite significant despite the seemingly pleasant first day.  But, he had a much harder time weaning off of the morphine this time.   The continuous flow of Diladid had to be reconnected after Drew…