Well, it happened.  Drew spoke of his limb difference.  I was rolling his sleeves up on a new shirt and Drew casually said, “I wish I was like other kids.”  “How so?” I responded, always carefully avoiding implanting the idea of his differences.  I was hoping that he was speaking of his legs, for which…

The Struggle With Braces

Well, the braces with the new knee joints were all great while they were shiny and new, but we quickly realized that our struggles have yet to be completely relieved.  It started with a mysterious rare pop that came from his knee joints sparking anxiety in us all fearing that the joint would collapse causing…

Pain, Pain, Go Away!

Well, it’s been a month since Drew’s most recent surgery and I wish I could say that it was in the past and like it never happened.  But, the aftermath of this surgery, like the others, has been overwhelming.  Sleepless nights.  Restricted mobility.  Loss of independence.  Unbearable pain. Stalled progress and probably regression in abilities. …