Surgery #11

Sometimes, I just don’t have a beautifully thought out riveting opener to my posts to pull you in. And, this one won’t be an exception. I’m just going to jump right on in like you would a pool after a few cool evenings. After much hassle and many miles, we finally got Drew’s hip piece…

Growing Upwards and Onwards!

Summer break is over and what a summer it was.  Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum.  We visited Florida for a follow-up with Dr. Paley.  We were lucky to be 30 minutes or…

Summer is Coming to an End

I usually reserve posts for when I’m feeling inspirational or have a strong, thought-out opinion about a matter, but this time I’m just going to document some events that have occurred over the summer.  Typically, I dislike the “reciting a series of events” style of writing, but my hope is one day that Drew will…

Summer Vacation is Here

  I know it’s been an unusually long time since my last post.  It’s definitely much harder when school is out finding lengthy periods of time in which I can escape to my laptop in another room, thanks to a nosy 4-year old who is obsessed with tapping the keys of said laptop whenever he’s…

Insurance is BULL $#%^

Special needs have all kinds of challenges, both upfront and many “behind the scenes”.  The recent weeks have been a little more “behind the scenes” frustrating and time-consuming than outward challenges.  Which, in all honesty, is a good thing because that means that Drew is sailing on routinely and things have been pretty stable for…

Drew Graduates!

  I’m proud to announce that Drew is an official graduate of the intensive suit therapy program at Believe Therapy! Drew completed his last day at Believe Therapy on Friday, February 3rd having completed 60 hours of intense physical therapy in three weeks.  It would have taken around five months to complete the same number…

Believe Therapy Week 1 – Check!

  Well, five days of Believe Therapy complete and what a week it was.  Each day was full of relentless labor, drenching sweat and even occasional tears as Drew was pushed to the absolute limit, and even slightly beyond by a dedicated team of therapists with merciless motivation, endless energy and pure love and support…

Another Successful Trip to Florida!

Last week, Drew and I flew to Southern Florida for Drew’s first follow-up with Dr. Paley since this summer’s corrective surgeries.  Only a small part of me felt a little stressed having to complete yet another cross-country trip to Florida because bitter cold weather blew through Kentucky making our upcoming trip  a treat.  But, our delight was…

Thumb and Therapy

Another trip to Cincinnati over and done.  Getting back into my truck for a lengthy drive wasn’t exactly what I had hoped so shortly after returning from Florida, but I managed to bear with it.  Even as I drove the whole trip with wet, cold shoes since we spent a couple of hours playing in…

And We’re Outta Here!

We just finished up our four-month stint in Florida.  We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation.  Of…

Therapy Continues

Drew just completed his fourth week of physical therapy.  It’s gone pretty good, though his progress has been slower than I like.  His range of motion is making incremental improvements.  He’s standing for very short periods of time and walking using a Lite Gait apparatus to help support his weight.  Drew has maintained cooperation and…

Eight Weeks Post-Op

Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…