Hand – drewunarmed

Another trip to Cincinnati over and done. Getting back into my truck for a lengthy drive wasn’t exactly what I had hoped so shortly after returning from Florida, but I managed to bear with it. Even as I drove the whole trip with wet, cold shoes since we spent a couple of hours playing in…

And We’re Outta Here!

We just finished up our four-month stint in Florida. We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation. Of…

Just a Little Venting

You know, I’ve been through a lot in my life: the death of my first-born son, multiple pregnancy losses, learning to cope with challenges and limitations of a chromosomal defect that caused the aforementioned issues and some other experiences in my past that I never talk about. Everybody has their battles and their own coping…

What’s to Come

T minus 7 days (including today) until Drew’s surgery in Florida. Our 1000+ mile road trip is looming in our very near future. With each day’s passing, my anxiety is becoming more and more prominent. Within days of this event that we’ve been anticipating for over a year, I find myself clouded with doubt, sadness,…

We had our first follow-up with an occupational therapist in Cincinnati this week. It’s exactly eight weeks post-surgery and three weeks since having the cast removed and starting the physical therapy. The appointment was to gauge his function and ensure progress is as expected. I was especially dreading this trip because it was my first…

CCK, How Do You Feel!?!

Well, it took 10 weeks, but we finally received Drew’s braces. And, this time it was quite the drama. After numerous calls to the doctor’s office to rush paperwork and update requests to the orthotist, we finally had an appointment to fit Drew’s new braces. And, just in time too because mid-week on Spring Break,…

It has been pretty hectic in our household this past month. I’m struggling with how to smoothly transition between one subject to another and, well, basically figuring out where to start…. So, it’s been over a month since Drew’s hand surgery. He had his cast on for a total of five weeks and it was…

Life in a Cast

Drew is nine days post-hand surgery and overall it’s been fine. Drew has had no pain, other than the few times his hand got jarred from rough-housing activities. Drew even returned to school a mere two days after his surgery amazingly. When you consider he had two fingers cut off and one sewed back on to…

Ten Fingers are Overrated

It’s no secret that Drew has undergone many surgeries, 16-17 total. So many that I struggle to remember exactly how many (has he had three sets of ear tubes or was it four?) So many that I struggle wondering if I should count his GI procedure as a surgery (it was just a camera going…