It has been pretty hectic in our household this past month.  I’m struggling with how to smoothly transition between one subject to another and, well, basically figuring out where to start…. So, it’s been over a month since Drew’s hand surgery.  He had his cast on for a total of five weeks and it was…

It Gets Real

I’ve known about these impending leg surgeries in Florida since July.  Dr. Paley described them to us during our last visit.  It’s no surprise. But, what was surprising to me was how hard it hit after Drew’s recent follow-up with Dr. Paley on Monday. Drew and Daddy flew to Florida the seventh time, thanks to…

Florida-Bound!

So, I last left off waiting for Drew’s braces which we FINALLY did receive.  Turns out they had ordered new bars, but the ones that came in weren’t the correct ones so they had to re-order new bars which extended the wait.  We finally got them and Drew remembered how to walk luckily! This time…

More About the Braces

So, we’re still waiting for Drew’s braces.  We should get them back any moment now.  Everytime a FedEx truck is within sight, I clasp my hands together in hope and excitement and then my grin melts in defeat as it just continues down the road. It’s been about a month now without braces.  Aside from…

Florida and Cincinnati

Well, it has taken me this long to follow-up here about the remainder of our Florida trip plus some new developments in Drew’s medical future.  Now that school is back in session, I finally have some freedom to sit down and piddle away on the internet. The remainder of our trip in Florida went well. …

Another Visit with Dr. Paley

I was going to wait to write about our appointment until after we returned back to Kentucky, but I just tried to summarize our appointment, which ended about an hour ago, to my mother-in-law and had already found myself hazy on some details so I figured I better document now so I can refer back…

Finally Good News!

So many exciting things have happened since my last gloomy post. First, we’ve made numerous trips back and forth between home and Evansville, IN (an hour drive) to adjust Drew’s braces.  We’ve had a few goals in mind to alleviate some issues including the lack of extension his legs have.  He’s not quite able to…

Never Ending Story

My personal laptop continues to infuriate me with its stubbornness and hateful refusal to work properly so here I am at the public library trying to formulate all of my cumulative thoughts that I’ve been stewing into an organized and creative post.  So, I might ramble on relentlessly as all of my tightly contained thoughts burst through a…

The Surgery Process Continues

Well, one more trip to Florida accomplished.  It was full of action.  It didn’t seem like it was only nine days.  It felt a lot longer. Sunday we made our way to Nashville for an early flight out.  Exhausting it was.  But, we made it.  We picked up our rental car and made a bee…

Second Follow-up Visit with Paley

Well, that was one world-wind trip to Florida.  And it made us miss Florida even more!  It was sunny and 80 degrees, palm trees swaying in the nice breeze.  It confirmed our intentions of one day relocating to Florida on a more permanent status. Our trip started very early morning, 3 am to be exact…

Problems at Night

Days with Drew are great and fun, general 6-year-old annoyances and tempers aside.  But, nights?  Drew has spent the last several nights thrashing in restless sleep, screaming in incoherent and inconsolable outbursts.  Because of his history, we are always inclined to believe he’s in pain.  But sometimes during the outbursts causing him to hyperventilate and sometimes…