Whew, it’s been a long time since I’ve blogged!!! Now that things have slowed down in the specialist/surgery department, our lives have almost been routine and mundane. But, Drew’s braces have kept things a little interesting. I’m telling you, HKAFO’s are no joke. Drew’s HKAFO’s are a life-saver and provide so much wanted independence for…
Tag: pain
Surgery #11
Sometimes, I just don’t have a beautifully thought out riveting opener to my posts to pull you in. And, this one won’t be an exception. I’m just going to jump right on in like you would a pool after a few cool evenings. After much hassle and many miles, we finally got Drew’s hip piece…
Drew Graduates!
I’m proud to announce that Drew is an official graduate of the intensive suit therapy program at Believe Therapy! Drew completed his last day at Believe Therapy on Friday, February 3rd having completed 60 hours of intense physical therapy in three weeks. It would have taken around five months to complete the same number…
Believe Therapy Week 1 – Check!
Well, five days of Believe Therapy complete and what a week it was. Each day was full of relentless labor, drenching sweat and even occasional tears as Drew was pushed to the absolute limit, and even slightly beyond by a dedicated team of therapists with merciless motivation, endless energy and pure love and support…
Believe Therapy – Day 1
We’ve been anticipating this specialized therapy for a few months, but it still seemed to sneak up on us out of the blue. And, not to be out done, “life” was bound and determined to make this trip as stressful as possible starting with a miserable head cold making its way through the family one…
Therapy Continues
Drew just completed his fourth week of physical therapy. It’s gone pretty good, though his progress has been slower than I like. His range of motion is making incremental improvements. He’s standing for very short periods of time and walking using a Lite Gait apparatus to help support his weight. Drew has maintained cooperation and…
Life After Surgery
Well, it’s been a nice change of routine to have Daddy home this last week. It wasn’t so overwhelming finally having him by my side again. The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting. I finally have…
Eight Weeks Post-Op
Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…
In Our Stride
I’m relieved to report that we have hit our stride in this surgery process. Pain is no longer as intense. Drew only requires pain medicine twice a day. I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…
And On To the Right
Friday, we had pre-op: just a quick visit with Dr. Paley and vitals with the downstairs team. It was a much shorter day than last time since they decided to do any blood work on Tuesday, the day of surgery. Drew has been in a great place after his left-leg surgery. During the day, he…
The Recovery Process Begins
Well, surgery was completed Tuesday in a 5-hour procedure and Drew was admitted to the hospital for two nights as expected. I don’t know what is worse: the actual surgery or hospital stays. Nathan and I constantly took turns staying with Drew. Nathan would sleep over in the pull-out recliner in Drew’s room each night…
Another Surgery in Florida Part I
Man, I did not mean to withhold all of the details of our journey so long that I would have one long post about the various phases of our adventure so far. But, to say that this has been completely and utterly exhausting is a gross understatement. I went an entire three days without taking…