Drew’s Longer Left Arm

OK, I’m not even going to start this post with some flim-flam excuse about why it’s been so long since I’ve updated – since August 2019. I’ve thought about this blog about once a week since December and tried to motiviate myself to document our goings-on as I once did so faithfully, but the motivation…

Wrist Correction Update

I am kicking myself for not being as dedicated to documenting Drew’s journey with TAR as heavily as before. I was more committed to processing all of our thoughts, fears, and experiences in the previous years, but I suppose other tasks and responsibilities took over. But, now that both boys are in school and I’m…

Gearing Up for Surgery

I can’t believe how long it’s been since I’ve written about Drew. I just checked my last post and I’ve been quiet since June 2018. It’s not that I’ve been so preoccupied with endless challenges of special needs parenting, but it’s not been uneventful either. I’ll call it a mix between lack of motivation and…

Growing Upwards and Onwards!

Summer break is over and what a summer it was.  Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum.  We visited Florida for a follow-up with Dr. Paley.  We were lucky to be 30 minutes or…

Summer is Coming to an End

I usually reserve posts for when I’m feeling inspirational or have a strong, thought-out opinion about a matter, but this time I’m just going to document some events that have occurred over the summer.  Typically, I dislike the “reciting a series of events” style of writing, but my hope is one day that Drew will…

Life After Surgery

Well, it’s been a nice change of routine to have Daddy home this last week.  It wasn’t so overwhelming finally having him by my side again.  The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting.   I finally have…

Eight Weeks Post-Op

Well, it’s been six weeks since my last post so in review: Drew had a rod surgically placed by Dr. Paley in his left leg on May 17th. Drew then had a rod surgically placed into the right leg on May 31st. Daddy returned home to Kentucky for work while I remained in Florida with…

In Our Stride

I’m relieved to report that we have hit our stride in this surgery process.  Pain is no longer as intense.  Drew only requires pain medicine twice a day.  I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…

The Pain

Drew ended up spending three nights in the hospital instead of two as he did for his right.  His pain level was quite significant despite the seemingly pleasant first day.  But, he had a much harder time weaning off of the morphine this time.   The continuous flow of Diladid had to be reconnected after Drew…

And On To the Right

Friday, we had pre-op: just a quick visit with Dr. Paley and vitals with the downstairs team.   It was a much shorter day than last time since they decided to do any blood work on Tuesday, the day of surgery. Drew has been in a great place after his left-leg surgery.  During the day, he…

The Recovery Process Begins

Well, surgery was completed Tuesday in a 5-hour procedure and Drew was admitted to the hospital for two nights as expected.  I don’t know what is worse: the actual surgery or hospital stays. Nathan and I constantly took turns staying with Drew.  Nathan would sleep over in the pull-out recliner in Drew’s room each night…

Another Surgery in Florida Part 2

In summary from Part 1: Drew misses his friends and school miserably. We drove 1063 miles and 17 hours from Kentucky to Florida.  It sucked, but didn’t go as bad as I had thought it was going to go. We love our new condo and had a day of fun before the real business began….