Life After Surgery

Well, it’s been a nice change of routine to have Daddy home this last week.  It wasn’t so overwhelming finally having him by my side again.  The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting.   I finally have…

In Our Stride

I’m relieved to report that we have hit our stride in this surgery process.  Pain is no longer as intense.  Drew only requires pain medicine twice a day.  I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…

The Recovery Process Begins

Well, surgery was completed Tuesday in a 5-hour procedure and Drew was admitted to the hospital for two nights as expected.  I don’t know what is worse: the actual surgery or hospital stays. Nathan and I constantly took turns staying with Drew.  Nathan would sleep over in the pull-out recliner in Drew’s room each night…

Another Surgery in Florida Part 2

In summary from Part 1: Drew misses his friends and school miserably. We drove 1063 miles and 17 hours from Kentucky to Florida.  It sucked, but didn’t go as bad as I had thought it was going to go. We love our new condo and had a day of fun before the real business began….

Another Surgery in Florida Part I

Man, I did not mean to withhold all of the details of our journey so long that I would have one long post about the various phases of our adventure so far.  But, to say that this has been completely and utterly exhausting is a gross understatement.  I went an entire three days without taking…

What’s to Come

T minus 7 days (including today) until Drew’s surgery in Florida.  Our 1000+ mile road trip is looming in our very near future.  With each day’s passing, my anxiety is becoming more and more prominent.  Within days of this event that we’ve been anticipating for over a year, I find myself clouded with doubt, sadness,…

We had our first follow-up with an occupational therapist in Cincinnati this week.  It’s exactly eight weeks post-surgery and three weeks since having the cast removed and starting the physical therapy.  The appointment was to gauge his function and ensure progress is as expected. I was especially dreading this trip because it was my first…

Ten Fingers are Overrated

It’s no secret that Drew has undergone many surgeries, 16-17 total.  So many that I struggle to remember exactly how many (has he had three sets of ear tubes or was it four?)  So many that I struggle wondering if I should count his GI procedure as a surgery (it was just a camera going…

Drew’s New Port

Well, it’s taken me until just now to 1) mentally recover from the stress that was during Drew’s surgery and 2) have enough time to step away from the boys to document our experience.  Our two days spent before, during and after Drew’s surgery has been, in a word, stressful.  Supporting your nearly-eight-year-old-child through any…

It Gets Real

I’ve known about these impending leg surgeries in Florida since July.  Dr. Paley described them to us during our last visit.  It’s no surprise. But, what was surprising to me was how hard it hit after Drew’s recent follow-up with Dr. Paley on Monday. Drew and Daddy flew to Florida the seventh time, thanks to…

Florida-Bound!

So, I last left off waiting for Drew’s braces which we FINALLY did receive.  Turns out they had ordered new bars, but the ones that came in weren’t the correct ones so they had to re-order new bars which extended the wait.  We finally got them and Drew remembered how to walk luckily! This time…

More About the Braces

So, we’re still waiting for Drew’s braces.  We should get them back any moment now.  Everytime a FedEx truck is within sight, I clasp my hands together in hope and excitement and then my grin melts in defeat as it just continues down the road. It’s been about a month now without braces.  Aside from…