Upper Extremity – drewunarmed

I know it’s been a long time since I’ve shared. I’ve just been going through the motions of raising a mobility-challenged child so it feels slighty routine and unremarkable, yet there are highlights of excitement. Physical therapy has been normal. I am disheartened to acknowledge that Drew has lost a lot of range of motion…

Thumb and Therapy

Another trip to Cincinnati over and done. Getting back into my truck for a lengthy drive wasn’t exactly what I had hoped so shortly after returning from Florida, but I managed to bear with it. Even as I drove the whole trip with wet, cold shoes since we spent a couple of hours playing in…

Just a Little Venting

You know, I’ve been through a lot in my life: the death of my first-born son, multiple pregnancy losses, learning to cope with challenges and limitations of a chromosomal defect that caused the aforementioned issues and some other experiences in my past that I never talk about. Everybody has their battles and their own coping…

In Our Stride

I’m relieved to report that we have hit our stride in this surgery process. Pain is no longer as intense. Drew only requires pain medicine twice a day. I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…

CCK, How Do You Feel!?!

Well, it took 10 weeks, but we finally received Drew’s braces. And, this time it was quite the drama. After numerous calls to the doctor’s office to rush paperwork and update requests to the orthotist, we finally had an appointment to fit Drew’s new braces. And, just in time too because mid-week on Spring Break,…

It has been pretty hectic in our household this past month. I’m struggling with how to smoothly transition between one subject to another and, well, basically figuring out where to start…. So, it’s been over a month since Drew’s hand surgery. He had his cast on for a total of five weeks and it was…

Life in a Cast

Drew is nine days post-hand surgery and overall it’s been fine. Drew has had no pain, other than the few times his hand got jarred from rough-housing activities. Drew even returned to school a mere two days after his surgery amazingly. When you consider he had two fingers cut off and one sewed back on to…

Ten Fingers are Overrated

It’s no secret that Drew has undergone many surgeries, 16-17 total. So many that I struggle to remember exactly how many (has he had three sets of ear tubes or was it four?) So many that I struggle wondering if I should count his GI procedure as a surgery (it was just a camera going…

Florida and Cincinnati

Well, it has taken me this long to follow-up here about the remainder of our Florida trip plus some new developments in Drew’s medical future. Now that school is back in session, I finally have some freedom to sit down and piddle away on the internet. The remainder of our trip in Florida went well. …

Bragging Rights

Whew….I’ve had a hard week, and what better time to have a hard week than when Nathan is home to pick up my slack as I try to regain my composure after a stressful week thus the lack of activity on this blog. Apologies aside, I have many updates. Foremost on my mind is a…