Drew just completed his fourth week of physical therapy. It’s gone pretty good, though his progress has been slower than I like. His range of motion is making incremental improvements. He’s standing for very short periods of time and walking using a Lite Gait apparatus to help support his weight. Drew has maintained cooperation and…
Tag: walking
Life After Surgery
Well, it’s been a nice change of routine to have Daddy home this last week. It wasn’t so overwhelming finally having him by my side again. The constant running and the “just trying to survive the day and waking up to do it all on repeat again and again” was getting exhausting. I finally have…
CCK, How Do You Feel!?!
Well, it took 10 weeks, but we finally received Drew’s braces. And, this time it was quite the drama. After numerous calls to the doctor’s office to rush paperwork and update requests to the orthotist, we finally had an appointment to fit Drew’s new braces. And, just in time too because mid-week on Spring Break,…
Drew Walking….or Not So Much
Well, would you believe that since my last post detailing a catastrophic break to Drew’s braces rendering them not usable and them getting fixed that Drew has broken yet another bar?!? This will make at least the third break. And this bar only lasted three weeks max before breaking again! Each break has occurred in…
The Struggle With Braces
Well, the braces with the new knee joints were all great while they were shiny and new, but we quickly realized that our struggles have yet to be completely relieved. It started with a mysterious rare pop that came from his knee joints sparking anxiety in us all fearing that the joint would collapse causing…
Finally Good News!
So many exciting things have happened since my last gloomy post. First, we’ve made numerous trips back and forth between home and Evansville, IN (an hour drive) to adjust Drew’s braces. We’ve had a few goals in mind to alleviate some issues including the lack of extension his legs have. He’s not quite able to…
Never Ending Story
My personal laptop continues to infuriate me with its stubbornness and hateful refusal to work properly so here I am at the public library trying to formulate all of my cumulative thoughts that I’ve been stewing into an organized and creative post. So, I might ramble on relentlessly as all of my tightly contained thoughts burst through a…
Back at Square One
Well, Drew’s cast has since been removed and here’s hoping that Drew will no longer require a cast. I’m sure the technician suffered some percentage of hearing loss amidst the shrill saw and the even shriller screaming from the panicked Drew. Drew has a new scar to his collection. The incision from his July surgery…
Drew’s Biggest Year Ever
We’ve been fortunate enough to have a Medicaid card for Drew’s disabilities to help offset the cost of Drew’s significant medical expenses. Though this service doesn’t cost us dollars and cents, it does cost a lot of effort and labor. I have been tasked with documenting every interaction with a medical professional between July 2011…
Second Follow-up Visit with Paley
Well, that was one world-wind trip to Florida. And it made us miss Florida even more! It was sunny and 80 degrees, palm trees swaying in the nice breeze. It confirmed our intentions of one day relocating to Florida on a more permanent status. Our trip started very early morning, 3 am to be exact…
Problems at Night
Days with Drew are great and fun, general 6-year-old annoyances and tempers aside. But, nights? Drew has spent the last several nights thrashing in restless sleep, screaming in incoherent and inconsolable outbursts. Because of his history, we are always inclined to believe he’s in pain. But sometimes during the outbursts causing him to hyperventilate and sometimes…
Drew is a Miracle!
I didn’t intend on blogging anything tonight, but as I finished putting together my dinner in the kitchen and being joined by Drew in the kitchen, who having missed me took it upon himself to get off of the chair and walk to be with me, I have once again become inspired and amazed of…
drewunarmed 