Summer break is over and what a summer it was. Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum. We visited Florida for a follow-up with Dr. Paley. We were lucky to be 30 minutes or…
Tag: wheelchair
Going Through the Motions
I know it’s been a long time since I’ve shared. I’ve just been going through the motions of raising a mobility-challenged child so it feels slighty routine and unremarkable, yet there are highlights of excitement. Physical therapy has been normal. I am disheartened to acknowledge that Drew has lost a lot of range of motion…
And We’re Outta Here!
We just finished up our four-month stint in Florida. We survived a 990 mile, 15-hour drive from Florida to our ol’ Kentucky home. Beginning the return to Kentucky exit plan, the physical therapy team at the Paley Institute made a series of videos to share with therapists here in order to continue Drew’s rehabilitation. Of…
In Our Stride
I’m relieved to report that we have hit our stride in this surgery process. Pain is no longer as intense. Drew only requires pain medicine twice a day. I give one dose about 30 minutes prior to bedtime just as a preemptive strike to avoid pain throughout the night, because a good solid night of…
The Recovery Process Begins
Well, surgery was completed Tuesday in a 5-hour procedure and Drew was admitted to the hospital for two nights as expected. I don’t know what is worse: the actual surgery or hospital stays. Nathan and I constantly took turns staying with Drew. Nathan would sleep over in the pull-out recliner in Drew’s room each night…
Brace Yourself
Well, Drew started soccer and though it was nerve-wracking at first, it wasn’t all that bad. They performed some drills and Drew enjoyed kicking the ball around and even practiced playing goalie. He wasn’t able to run the warm-up lap which made me worry at first that this would be the moment his shoulders would…
Pain, Pain, Go Away!
Well, it’s been a month since Drew’s most recent surgery and I wish I could say that it was in the past and like it never happened. But, the aftermath of this surgery, like the others, has been overwhelming. Sleepless nights. Restricted mobility. Loss of independence. Unbearable pain. Stalled progress and probably regression in abilities. …
drewunarmed 