Wrist Correction Update

I am kicking myself for not being as dedicated to documenting Drew’s journey with TAR as heavily as before. I was more committed to processing all of our thoughts, fears, and experiences in the previous years, but I suppose other tasks and responsibilities took over. But, now that both boys are in school and I’m…

Right-hand Doubts

Are we doing the right thing?

Gearing Up for Surgery

I can’t believe how long it’s been since I’ve written about Drew. I just checked my last post and I’ve been quiet since June 2018. It’s not that I’ve been so preoccupied with endless challenges of special needs parenting, but it’s not been uneventful either. I’ll call it a mix between lack of motivation and…

Hurtful Words

As you can expect, Drew is quite the curiosity when meeting new kids.  It’s not unusual for him to be subject to looks and questions, which is totally understandable.  Young kids are naturally curious and polite questions about his arms haven’t been an issue.  Drew would casually respond, “I was born this way.”  But, other…

Braces are No Joke!

Whew, it’s been a long time since I’ve blogged!!!  Now that things have slowed down in the specialist/surgery department, our lives have almost been routine and mundane. But, Drew’s braces have kept things a little interesting.  I’m telling you, HKAFO’s are no joke.  Drew’s HKAFO’s are a life-saver and provide so much wanted independence for…

My Ongoing Showdown With Insurance

Well, would you believe it:  Things have been pretty much stable and uneventful for the last three months.  It’s not that I have forgotten my blog, it’s just that for once, our lives have been pretty normal! Last update centered on Drew’s 11th leg surgery to remove some hardware in each leg. Since, he’s back…

Surgery #11

Sometimes, I just don’t have a beautifully thought out riveting opener to my posts to pull you in. And, this one won’t be an exception. I’m just going to jump right on in like you would a pool after a few cool evenings. After much hassle and many miles, we finally got Drew’s hip piece…

The Moment We’ve All Been Waiting For

Originally posted on drewunarmed:
I know it has been a long time since I have written.  My schedule is pretty rigid – maintaining a household, breast-feeding a baby, and all of the work that goes into raising Drew, but something so special has happened that I have taken time out of my regularly scheduled cleaning routine…

Growing Upwards and Onwards!

Summer break is over and what a summer it was.  Drew attended an away-from-home camp at the Camp for Courageous Kids for the first time. He participated in a couple of day camps at a nearby children’s museum.  We visited Florida for a follow-up with Dr. Paley.  We were lucky to be 30 minutes or…

Summer is Coming to an End

I usually reserve posts for when I’m feeling inspirational or have a strong, thought-out opinion about a matter, but this time I’m just going to document some events that have occurred over the summer.  Typically, I dislike the “reciting a series of events” style of writing, but my hope is one day that Drew will…

Summer Vacation is Here

  I know it’s been an unusually long time since my last post.  It’s definitely much harder when school is out finding lengthy periods of time in which I can escape to my laptop in another room, thanks to a nosy 4-year old who is obsessed with tapping the keys of said laptop whenever he’s…

Insurance is BULL $#%^

Special needs have all kinds of challenges, both upfront and many “behind the scenes”.  The recent weeks have been a little more “behind the scenes” frustrating and time-consuming than outward challenges.  Which, in all honesty, is a good thing because that means that Drew is sailing on routinely and things have been pretty stable for…